RSD in the News - July 2005:

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Posted 7/27

Sports Injuries Linked to CRPS/RSD
The link between sports injuries— and the surgeries that treat them — and the risk ofdeveloping Complex Regional Pain Syndrome (CPRS), also known as Reflex...

Posted 7/26

Soc. Security Revamps Disability Benefits
WASHINGTON -- People seeking disability benefits from Social Security can expect to spend less time waiting for a decision under changes rolled out ...

Purdue Pharma - July Newsletter Volume 5-12
Pain Advocacy Community

Posted 7/25

The Food and Drug Administration (FDA) Wants to Hear From You!
"Vision 2006 - A Conversation with the American Public"

The FDA will be holding a series of public meetings nationwide and they want to hear from you and the entire rare disease community. The meetings in Miami, FL, Boston, MA, and Phoenix, AZ, will focus on five agency programs or initiatives - drug safety, direct-to-consumer advertising, dietary supplements, the Critical Path initiative, and the advisory committee process and how potential conflicts of interest are managed.

These meetings will be your opportunity to get a firsthand update on current FDA programs, and to interact with Dr. Lester Crawford, Commissioner of the FDA, along with the agency's top leadership and leading scientists.

The FDA is asking you to consider the following questions:

What information do you expect to receive from the FDA regarding the benefits and risks of new food and medical products?

Where do you currently get information about these products, and how beneficial is this information in helping to inform the decisions you make?

What additional information, if any, do you believe should be provided to enable you to discuss with your physician or other healthcare provider the benefits and risks of products for a health condition you have or think you might have?

What additional steps can the FDA take to improve its communication with consumers and build on your confidence in its activities and its mission?
Click here if you're interested in learning more about Vision 2006. The Federal Register notice will provide the information you'll need to submit comments (due November 30, 2005) or to register to make a presentation or attend one of the three meetings.

September 13, 2005 10 a.m. to 4 p.m. Miami, FL Intercontinental West Miami
2505 Northwest 87th Ave.
Miami, FL 33172

November 2, 2005 10 a.m. to 4 p.m. Boston, MA Boston Marriott Cambridge
2 Cambridge Center (Broadway and 3rd St.) Cambridge, MA 02142

November 30, 2005 10 a.m. to 4 p.m. Phoenix, AZ Phoenix Airport Marriott
1101 North 44th St.
Phoenix, AZ 85008

Posted 7/18

RSDSA Approves Two Research Grants for 2005
The RSDSA Board of Directors has approved the following two research grants. We would like to extend a heartfelt thank-you to everyone who has...